These inspired and inventive champions have contributed $1,500,00 to $1,999,999. Our Visionary partners help us plan for a future that includes a cure for arthritis. Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. Join us today and help lead the way as a Champion of Yes. “One of our goals is to help patients communicate the experience of worsening with their doctors,” Bingham says.Īs a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. The OMERACT group is developing a questionnaire to help patients better evaluate their symptoms and determine when to see their doctor, and to help doctors more accurately assess their patients’ symptom severity. In other words, is your flare severe enough to make you repeatedly stay home from work and miss social engagements? To create more alignment between patient experiences and doctor evaluations, Bingham’s group has focused not only on flare symptoms, but also on their consequences. “The doctor is focusing on whether there are more swollen joints, and whether the lab tests have changed, and will use that information to determine if you’re worse,” Bingham says. It just is unrelenting.” Another complained of stiffness so severe that, “I feel I am stuck together with superglue.” Though pain, stiffness and fatigue are common flare themes, duration, severity and frequency can vary widely from person to person.Įven though a flare can feel debilitating to you, your doctor’s assessment might not reveal your symptoms as significant. In focus groups, patients have described their flare symptoms in subjective terms. When it comes to defining flares, doctors and patients often don’t agree, and even individual patients have differing definitions.
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